DAPB3009 Healthy Child Programme

In November 2016, NHS England published Healthy Children: Transforming Child Health Information, a digital strategy describing how making child health information more accessible, and sharing this information, can support parents and professionals in their care of children and young people.

Phase 1 of this information standard supported the move to sharing of child health information by setting out the Healthy Child Record specification that care providers were asked to comply with, on a local basis, to ensure consistent use of standardised data formats across all providers.

Phase 2 - Interoperability and Implementation - of this information standard now introduces the mechanisms for sharing of this standardised data.  

This information standard is published under section 250 of the Health and Social Care Act 2012. An Information Standards Notice (see below) provides an overview of scope and implementation timescales, and the other listed documents provide further detail for those who have to implement the information standard.

Update

May 2025 – The Data Assurance Board approved an amendment to the existing Healthy Child Programme Information Standard. This amendment is to support the addition of reporting fields for Hereditary Tyrosinaemia (HT1) to the Newborn Blood Spot Screening (NBS) included within the standard and data collection. 

There are some other additional minor amendments included as part of this update. For example, update to two key Sickle cell screening outcome codes which are causing potential clinical incidents, and an additional decline sub-code for all conditions screened for. For full details of all changes in this update please refer to the updated Change Specification for the standard, under current release below.

Phase 2.1 - Interoperability

Phase 2

Phase 1