Cancer Programme Pilots Evaluation

Summary

Why and how we process your data in the Cancer Programme Pilots Evaluation data sets and your rights.

Controller	NHS England
How we use the information (processing activities)	The NHS Long Term Plan (LTP) was published in January 2019. It sets out stretching ambitions and commitments to improve cancer outcomes and services in England over the next ten years. The key ambitions in the NHS LTP for cancer are: by 2028, 55,000 more people each year will survive their cancer for five years or more; and by 2028, 75% of people with cancer will be diagnosed at an early stage (stage one or two). The NHS Cancer Programme continues to support the recovery of cancer services, funding Pilots to lead change at the local level through Cancer Alliances, who work in collaboration with their local Sustainability and Transformation Partnerships (STPs), Integrated Care Boards (ICBs) and their Integrated Care Systems (ICSs). The Cancer Programme collects data on all their pilots (Cancer Pilots) for monitoring and evaluation purposes, as they need to understand how effective their Pilots are individually and together for creating changes to benefit patients, such as improving earlier diagnosis and survival of cancer. It is expected that the data collected will be used to evaluate a number a Cancer Pilots, together and individually,
Does this contain sensitive (special category) data such as health information?	Yes
Is data transferred outside the UK?	This data is not transferred out of the UK
How long the data is kept	A maximum of 8 years, or dependent also on continuing validity of Directions or as per the current NHS Digital Records Management Policy, should the retention period change. The data will be appraised before it reaches its maximum retention period in accordance with the NHS England Policy and either recommended for secure destruction or an extension of the retention period if there is a justifiable reason.
Your rights	Be informed Get access to it Rectify or change it Erase or remove it Restrict or stop processing it Move, copy or transfer it Object to it being processed or used Know if a decision was made by a computer rather than a person
How can you withdraw your consent?	Consent is not our legal basis for processing
Is the data subject to decisions made solely by computers? (automated decision making)	The processing is not subject to any automated decision making.
Where does this data come from?	For Cancer Programme Pilots, we collect data from health care providers in England who have been commissioned by NHS England to deliver the Pilots. For current Pilots we collect data from: community pharmacies in England who are participating in the Community Pharmacy Pilot; targeted lung health check sites in England, who are participating in the TLHC Pilot
The legal basis for collecting this data	Direction from NHS England under s.254 of the Health and Social Care Act 2012 to establish and operate a system for the collection and analysis of Cancer Programme Pilots data. These Directions are called the Cancer Pilots Evaluation Directions 2024 UK GDPR Article 6(1)(c) - legal obligation UK GDPR Article 9(2)(g) – substantial public interest supplemented by: DPA 2018 Schedule 1, Part 2, para 6 - Statutory etc and government purposes UK GDPR Article 9(2)(h) –management of health and social care systems and services supplemented by: DPA 2018 – Schedule 1, Part 1, (2)(2)(f) – health or social care purposes Article 9(2)(i) – public interest in the area of public health, supplemented by DPA 2018, Schedule 1 Part 1, paragraph 3 – public health Article 9(2)(j) processing is necessary for Research and statistics supplemented by DPA 2018 paragraph 4: Schedule 1