Equality, Diversity and Inclusion in Health and Care Research Pilot

Summary

Why and how we process your data in the Equality, Diversity and Inclusion Pilot Dataset and your rights.

Controller	NHS England
How we use the information (processing activities)	NHS England will collect and analyse data from participating, publicly funded organisations providing health or social care in England for purposes of the Equality, Diversity and Inclusion in Health and Care Research Pilot (EDI pilot). The EDI Pilot is established for purposes of identifying variation in participation in health and care research, based on demographics, to assess and improve equality, diversity and inclusion in such research. NHS England will provide results of its analysis in the form of reports and dashboards, which will inform the Department of Health and Social Care’s (DHSC) strategy and policy decisions with the support of the National Institute for Health and Care Research (NIHR), aligned with the Best Research for Best Health: The Next Chapter and as set out in the NIHR Research Inclusion Strategy 2022 - 2027.
Does this contain sensitive (special category) data such as health information?	Yes
Who are recipients of this data?	The Department of Health and Social Care and the National Institute of Health Research will receive anonymised and aggregate data reports
Is data transferred outside the UK?	This data is not transferred out of the UK
How long the data is kept	5 years
Our lawful basis for holding this data	Legal obligation
Your rights	Be informed Get access to it Rectify or change it Erase or remove it Restrict or stop processing it Move, copy or transfer it Object to it being processed or used Know if a decision was made by a computer rather than a person
How can you withdraw your consent?	Consent is not the legal basis for processing
Is the data subject to decisions made solely by computers? (automated decision making)	No
Where does this data come from?	Data is collected from Health and Care organisations in England, conducting health research and who have agreed to participate in the pilot
The legal basis for collecting this data	Equality, Diversity and Inclusion in Health and Care Research Pilot Directions 2025 Article 6(1)(c) Legal Obligation Article 9(2)(g) Substantial public interest, supplemented by DPA 2018 Schedule 1, Part 2, Statutory and government purposes