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Maternity Services Data Set (MSDS)

Summary

Why and how we process your data in the Maternity Services Data Set (MSDS) , and your rights.

Controller NHS England
How we use the information (processing activities)

We collect information about you (your personal data) for the Maternity Services Data Set (MSDS), to help achieve better outcomes for women and babies from their care in maternity services. It provides data that will be used to commission services in a way that improves health, reduces inequalities, and supports service improvement and clinical quality. The data collected in MSDS includes personal and demographic information, diagnoses including long-term conditions and disabilities and care events plus screening activities.

NHS England has a central reporting system where an anonymised version of the MSDS will be held for reporting purposes. This platform will support the analysis of maternity services data and serve the following purposes:

  • anonymised data will be published on the NHS England website and shared with national bodies, allowing the effective monitoring of service standards, including efficiency, equity and effectiveness of service, by policy makers
  • extracts of data will be made available to care providers and their commissioners to allow the local monitoring of service provision, assist with allocating payments and help submitters to improve data quality
  • anonymised data will also be made available at provider level to help to inform a patient's care and treatment choices

The data held in the MSDS may also be linked to data held by NHS England from various other data sets and collections, including (but not limited to) the Community Services Data Set (CSDS) and Mental Health Services Data Set (MHSDS). The MSDS data may also be linked to external data sources such as Office for National Statistics (ONS) data and data from the National Neonatal Data Set Linkage is carried out in order to investigate the relationship between care in maternity services and subsequent activity, such as health visiting and school nursing activity, as well as referrals to neonatal units, mental health services and other services.

Does this contain sensitive (special category) data such as health information? No
Who are recipients of this data?

Available via the Data Access Request Service (DARS). Recipients are recorded in the Data Uses Register for these disseminations.

Is data transferred outside the UK? This data is not transferred out of the UK.
How long the data is kept 20 years minimum from the date the data is received.
Your rights
  • Tick Be informed
  • Tick Get access to it
  • Tick Rectify or change it
  • Cross Erase or remove it
  • Tick Restrict or stop processing it
  • Cross Move, copy or transfer it
  • Cross Object to it being processed or used
  • Cross Know if a decision was made by a computer rather than a person
How can you withdraw your consent?

Consent not the basis for processing. 

Where does this data come from? The MSDS standard applies to all NHS-funded maternity services in England, including Acute Trusts and Foundation Trusts actively involved in the provision of maternity services. The data are extracted from the administrative systems used within these services, submitted securely by the services to NHS England, and held securely by NHS England in the form defined by the MSDS standard.
The legal basis for collecting this data

We have a Direction from NHS England under s.254 of the Health and Social Care Act 2012 to establish and operate an information system for the collection and analysis of maternity services data.

GDPR Article 6 (1) (c) - processing is necessary for compliance with a legal obligation to which the controller is subject

GDPR Article 9 (2) (h) – processing is necessary for the …… management of health and social care systems and services

DPA 2018 – Schedule 1, Part 1, (2) (2) (f) – processing is necessary for the management of health care systems or services or social care

systems or services.