Pulmonary hypertension is a rare disease which occurs at any age, has many causes, and often shortens life expectancy. In the UK, seven hospitals are designated to diagnose and treat pulmonary hypertension in adults, and one hospital for children. The National Audit of Pulmonary Hypertension (NAPH) is a prospective audit of processes and outcomes and has the participation of all eight designated centres. This seventh annual report includes standards for the first time, which it uses to measure clinical practice. This audit includes England and Scotland.
For the 7th annual report, ONS death date was only taken if a patient's death date was already recorded in NAPH. For other reports, the ONS death dates of patients without a death date in NAPH have also been included. This means that average survival in the 7th annual report is longer than in other reports. Please see later publications in the series such as the 8th annual report, which is available here: https://digital.nhs.uk/data-and-information/publications/statistical/national-pulmonary-hypertension-audit/national-audit-of-pulmonary-hypertension-8th-annual-report.