Data sharing standard 5d - Expected Measurable Benefits

Section i: Benefits type

1. This section must contain one of the following options:

• on CRN portfolio
• not on portfolio but automatically eligible
• other specific NIHR approval
• benefits statement drafted for DARS

Read about the CRN Portfolio and eligibility criteria.

Section ii: Expected measurable benefits to health and/or social care, including target date

2. This section must: 

• contain details of how the processing of the data is expected to result in public benefits connected with the provision of health care or adult social care, or with the promotion of health
• be written in a manner considered to be lay-accessible – for example, it should not contain excessive technical language or require the reader to have subject matter expertise
• be concise and realistic
• where data was processed as a 'legitimate interest' (UK GDPR Article 6(1)(f)), clearly and logically convey how the benefits fulfil the legitimate interests of the data controller

3.    This section should be structured as follows:

• state what public benefits connected with the provision of health care or adult social care or with the promotion of health as expected to be achieved as an outcome of the proposed uses of the data
• state what specific benefits to health care users are considered to be likely as an outcome depending on the information yielded from the proposed uses of the data quantifying, where possible, the expected or potential magnitude of the impact – such as the number of patients affected or the potential cost and efficiency savings
• state how it is envisaged that the proposed outputs will lead to those benefits
• where possible, indicate the expected timeframe for benefits to be realised
• provide details of any involvement of members of the public or consideration of diverse public views which have contributed to the design of the proposed use of the data and which have supported the proposed data use to achieve the benefits described
• state what actions will be taken to optimise the potential benefits from the use of the data. For example, what efforts will be taken to advertise the findings to a wider audience should the findings warrant such attention? Were any relevant entities such as charities or societies contacted and made aware of the proposed use of the data? 

Section iii: Yielded benefits

4. This section must provide details of actual benefits resulting from the processing of the data if benefits have been achieved.

5. This section must not list outputs unless in the context of explaining how they were used to achieve benefits.

6. If no benefits have been achieved by the point an application to extend, renew or amend a DSA is submitted and the existing DSA indicated that benefits were expected by that point, this section should explain why the expected benefits had not been achieved in the expected timeframe and indicate if and by when it is expected that the benefits will be achieved.

7. If no benefits have been achieved by the point an application to extend, renew or amend a DSA is submitted and the existing DSA did not indicate that benefits were expected by that point, it is not necessary to update this section. If the section is blank, it will be assumed that no benefits have been achieved to date.