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National Paediatric Diabetes Audit

Data Provision Notice to request the submission of English and Welsh data from the National Paediatric Diabetes Audit, to allow the monitoring of the transition of young people to adult diabetes services, through linkage with data held by NHS England's National Diabetes Audit programme.

Page contents

Overview

The data specified in this Data Provision Notice is required to support a direction from NHS England and a request from Digital Health and Care Wales.

The data the National Paediatric Diabetes Audit (NPDA) is collected by the Royal College of Paediatrics and Child Health (RCPCH) and relates to any child or young person receiving care from a paediatric diabetes service in England and Wales up to the age of 25.

The data will enable NHS England to undertake linkage between the NPDA and the National Diabetes Audit (NDA) which is managed by NHS England, to help evaluate the care of patients who transition from children to adult diabetes services. The aggregated findings of this evaluation will be published by NHS England as the Adolescents and Young Adults (AYA) Audit (formerly known as the Transition Audit).

In addition, NHS England will use the data to design a future report looking at type 2 care for young people (under the age of 40). This report will focus on care processes and treatment targets, as set out in the AYA Audit, as well as demographic information relating to where these patients are being seen and how many are being diagnosed with type 2 diabetes.

National Paediatric Diabetes Audit (NPDA) data for England relating to Hybrid Closed Loop (HCL) technologies will be collected quarterly and linked to the NDA Core data set to measure uptake, equitable access and effectiveness of HCL devices as part of NHS England’s Hybrid closed loop technologies: 5-year implementation strategy.

Scope

This Notice is served on:

  • Healthcare Quality Improvement Partnership (HQIP) as data controller for the NPDA (both England and Wales)

HQIP is requested to provide information to NHS England in the form, manner and period specified in this Notice via the commissioned processor: the Royal College of Paediatrics and Child Health.

Legal basis for provision of data

ARTICLE

National diabetes audit directions 2017

Directions given by NHS England requiring NHS Digital to establish and operate a system for the collection of information to be known as the National Diabetes audit information system.

Period

The NPDA data for England and Wales will be collected annually in autumn for the previous audit year’s data and quarterly for Hybrid Closed Loop (HCL) purposes (England only)

Read the Data Provision Notice and supporting data set specification

National Paediatric Diabetes Audit Data Provision Notice (Version 3)

pdf 166 KB
ARTICLE

National Paediatric Diabetes Audit Core Data Set

The data set for the collection is published on the RCPCH website.

Data items - AYA and Young T2

xlsx 19 KB

Updates

23 September 2024

The DPN has been updated to include the use of NPDA for the HCL strategy and Getting it right first time (GIRFT).

24 July 2024

DPN updated to include the use of the NPDA to collect data on hybrid closed loop technologies. 

11 March 2022

Version 2.0 of this Notice has been issued to include the collection of Welsh data and the renaming of the Transition Audit to Adolescents and Young Adults Audit.

Last edited: 18 November 2024 9:10 am