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Digital

NHS All Age Continuing Care Patient Level Data Set

Summary

Why and how we process your data in the NHS All Age Continuing Care Patient Level Data Set and your rights. (This collection replaces the NHS Continuing Health Care (CHC) Patient Level Data Set. 

Controller NHS England
How we use the information (processing activities)

The All Age Continuing Care (AACC) data set is a patient level, output based, secondary uses data set which aims to deliver robust, comprehensive, nationally consistent and comparable person-based information for children, young people and adults who are in contact with continuing care services, as defined in the National Framework for NHS Continuing Healthcare and NHS-funded Nursing Care, and the National Framework for Children and Young People’s Continuing Care. As a secondary uses data set it intends to re-use operational and financial data for purposes other than direct patient care.

The AACC data set is used to inform service improvements and monitor service performance, patient experience, and outcomes.

This is an end-to-end data set (from referral to end of service provision) covering initial checklist all the way through the assessment process to the commissioning and monitoring of individual care packages.

Processing of information is key in turning raw data into understandable intelligence on all aspects of performance, patient care and efficiency relating to NHS AACC
Does this contain sensitive (special category) data such as health information? Yes
Is data transferred outside the UK? This data is not transferred out of the UK
How long the data is kept A maximum of 20 years, or dependent also on continuing validity of Directions or as per the current NHS Digital Records Management Policy, should the retention period change. The data will be appraised before it reaches its maximum retention period in accordance with the NHS Digital Policy and either recommended for secure destruction or an extension of the retention period if there is a justifiable reason.
Our lawful basis for holding this data Legal obligation
Your rights
  • Tick Be informed
  • Tick Get access to it
  • Tick Rectify or change it
  • Cross Erase or remove it
  • Tick Restrict or stop processing it
  • Cross Move, copy or transfer it
  • Cross Object to it being processed or used
  • Cross Know if a decision was made by a computer rather than a person
How can you withdraw your consent?

Consent is not our legal basis for processing 

Is the data subject to decisions made solely by computers? (automated decision making) The processing is not subject to any automated decision making.
Where does this data come from? NHS England collects the NHS All Age Continuing Care data from all Integrated Care Boards (ICBs) that commission both NHS funded and jointly funded AACC services in England (and any Commissioning Support Units (CSUs) providing this service on behalf of ICBs).
The legal basis for collecting this data

Direction from NHS England under s.254 of the Health and Social Care Act 2012 to establish and operate a system for the collection and analysis of Continuing Healthcare Patient Level Data. The NHS All Age Continuing Care Directions 2024 (which replaced The Continuing Healthcare Directions 2022 which were previously relied upon) are published on the NHS England website.

UK GDPR Article 6(1)(c) - legal obligation

UK GDPR Article 9(2)(g) – substantial public interest supplemented by:

DPA 2018 Schedule 1, Part 2, para 6 - Statutory etc and government purposes

UK GDPR Article 9(2)(h) –management of health and social care systems and services supplemented by: DPA 2018 – Schedule 1, Part 1, (2)(2)(f) – health or social care purposes