How to complete the antenatal data collection form
Please use this form for reporting pregnancies, of any gestation, with suspected or confirmed congenital anomalies (structural, chromosomal or biochemical). This form should be used when anomalies are suspected or have been identified antenatally and the pregnancy has not ended.
Please do not wait until final confirmation or delivery/pregnancy outcome before sending this form. For suspected anomalies, we may receive confirmation from another source, or we will obtain follow up information at a later stage.
We depend on multiple reporting mechanisms to achieve high case ascertainment so do not rely on someone else notifying us. If in doubt always complete a form and send it through to us.
For pregnancies with multiple fetuses with congenital anomalies, please make sure it’s clear which fetus the information relates to.
Please send us as much information as you have available, don’t worry if you can’t complete all the data fields. Please attach copies of any of the following to save time:
- relevant scans
- clinic letters
- laboratory reports
- post mortem reports
If you are attaching any reports, you do not need to complete the results in the form as well.
You need to have access to Adobe Acrobat Reader 9 or above. You can download it for free (you might need to ask for help from your IT department).
Save a blank copy of the form and use this each time you complete a new form (you can save a copy to your desktop). You can tab or mouse click through the fields to enter the information you have.
After completion, lock the form by clicking on the button at the bottom of the form and save a copy of it on a secure network directory for your information (you might want to label the file with the local PID number).
Please then send an email with the completed form and any copies of scans, clinic letters, laboratory reports or post mortem reports attached from an 'nhs.net' email address to your NCARDRS regional office 'nhs.net' email address. You can find your local NCARDRS office using the contacts button at the bottom of the page.
If you do not have an 'nhs.net' email address there are alternative options for returning the form securely. Please contact your NCARDRS regional office for more information. Do not post the form.
NCARDRS provides essential data for patients, their families, clinicians, public health, research and service delivery to improve monitoring of the frequency, nature, cause and outcomes of congenital anomalies and rare diseases.
If you have any further queries or problems completing the form please contact us.
Last edited: 14 February 2023 8:29 am
