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Explore how NDRS data is helping to shape life-saving decisions for women with BRCA-related breast cancer.

This guide supports users with the implementation and collection of data as part of the Cancer Outcomes and Services Data set (COSD) v10.2.8 data set.

This user guide describes all the pathological data items in COSD, together with definitions, formats, codes and values and additional guidance on collection and implementation.

National data on the prevalence of spinal muscular atrophy type 1 (SMA1) from the National Congenital Anomaly and Rare Disease Registration Service (NCARDRS)

The latest 2019 congenital anomaly statistics report released by National Congenital Anomaly and Rare Disease Registration Service (NCARDRS)

This is a publication on the lessons learned on the feasibility of a national ovarian cancer clinical audit utilising only existing cancer registry, Systemic Anti Cancer Therapy (SACT) and Hospital Episode Statistics (HES) data.