Our work

Discover more about the work programmes and analytical outputs of the National Disease Registration Service and our partnerships with academia, health organisations and charities.

NDRS work programmes

Cancer

Discover more about our work using cancer data including in areas such key summary statistics, cancer diagnostics and awareness campaigns.

Congenital anomalies and rare diseases

Discover more about the work programmes focused on the congenital anomaly and rare diseases data.

Genomics

Discover more about our work using genomics data to support disease diagnostics, prevention and treatment in the NHS.

Cancer partnerships

Breast screening After Radiotherapy Dataset (BARD)

The Breast screening After Radiotherapy Dataset (BARD) helps to optimise screening for women who may be at higher risk of developing a second primary cancer.

Cancer data and the Cancer Drugs Fund

The partnership on cancer data is set up between NHS England and the systemic anti-cancer therapy (SACT) team at the National Disease Registration Service (NDRS).

Macmillan Cancer Support

Macmillan Cancer Support and the National Cancer Registration and Analysis Service (NCRAS) are working in partnership to develop a better understanding of the needs and experiences of people living with cancer.

Congenital anomaly and rare disease partnerships

Fetal Anomaly Screening Programme

The Fetal Anomaly Screening Programme (FASP) offers screening to all eligible women in England to try to find any health conditions their baby may have.

Non-Invasive Prenatal Testing (NIPT)

NIPT is a way of screening for Down’s syndrome, Edwards' syndrome and Patau's syndrome in a developing baby. NCARDRS supports the evaluative rollout of NIPT by collating the screening data and linking it to registration data.

International Clearinghouse (ICBDSR)

The International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR) is a voluntary non profit International Organisation affiliated with the World health organisation.

Orphanet

Orphanet is a unique resource for gathering and improving knowledge on rare diseases.

NDRS publications and outputs

Congenital anomalies annual reports

Explore all annual reports released by the National Congenital Anomalies and Rare Diseases Registration Service (NCARDRS) containing information on congenital anomalies detected in babies delivered between 2015 - 2021.

Routes to diagnosis

This tool contains information on Routes to Diagnosis, a method of identifying and categorising key events in the healthcare system that lead to a patients diagnosis of cancer.

Urgent suspected cancer referrals

This dashboard provides referral, conversion and detection rates for urgent suspected cancer referrals in England.

Scientific journal library

All journal publications have been collated and are now available in a single, interactive and searchable table. This resource lists the numerous scientific journal publications produced by the National Disease Registration Service (NDRS) and demonstrates how we utilise patient data.

PUBLIC BETA