Non Primary Cancers including recurrences by Trust

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As cancer treatments and survival improve there has been a growing interest in the relapse and recurrence of the disease. The time between treatment and relapse is becoming an increasingly important measure of the success of initial treatments and the quality of life of those living with and beyond cancer. One of the major recommendations of the Independent Cancer Taskforce was that accurate data should be collected on all patients where their disease recurs. The National Disease Registration Service (NDRS) has committed to supporting NHS England in improving data collection on these patients.

NDRS have been collecting recurrence data via data submissions as part of the Cancer Outcomes and Services Dataset (COSD) since 2013. Due to changes in the recording of recurrences from 2018, we use an umbrella term Non Primary Cancer (NPC) to describe a group which includes recurrence, transformations and progressions.

Recurrence, progressions and transformations data can also be obtained from the Cancer Waiting Times (CWT) treatment data set for diagnosed cancer patients.

This release summarises the annual number of NPCs submitted by Trusts in England from the COSD and CWT data set. Numbers for 2014 to 2021 are provided for 3-4 cancer sites:

• Breast NPCs (ICD10 C50 and D05)
• All other malignant NPCs (ICD10 C codes excluding C50 and C44)
• Other registerable NPCs (ICD10 C44 and non C codes)
• Unlinked (no primary site, for COSD only).

Acknowledgement

This work uses data that has been provided by patients and collected by the NHS as part of their care and support. The data are collated, maintained and quality assured by the National Disease Registration Service, which is part of NHS England.

Currently, many Trusts only submit a small number of NPCs compared to their primary cases. Although some variation by Trust is expected, it is believed that the true number of NPCs that occur is larger than the number of NPCs submitted to the NDRS. Because of this, this publication is focused on allowing the exploration of data quality and variation in submissions between Trusts. We hope in future that the data quality will improve and a more detailed publication exploring the types of recurrence and time to recurrence will be possible.

Please refer to the technical information tab in the dashboard for a full data item breakdown.

This is an annual publication released a few months after the National statistics cancer registration counts are published.

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