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This resource details many NDRS outputs, what they are and where they can be accessed. Some outputs are publicly available, others are only available to those working in the NHS (for example where reports are intended for operational feedback or data improvement and the levels of data granularity require additional security such as the NHS encrypted network). Outputs are listed in alphabetical order.
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Name of output |
Description |
Links |
|---|---|---|
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BRCA testing after a diagnosis of cancer |
This tool contains information on whether patients who are eligible for genetic testing after a cancer diagnosis are reported as tested for germline BRCA mutations. |
Public - BRCA testing after a diagnosis of cancer |
|
Cancer Outcomes and Services Dataset - Acute oncology dashboard - NHS only |
The Acute Oncology (AO) data in this report is focussed on patients with an emergency attendance or admitted patients (where the patients was in a bed for one or more nights). The purpose of these items is to capture the unplanned care cancer patients received in an Acute care environment. |
NHS only - COSD acute oncology tool |
|
Cancer Outcomes and Services Dataset - Diagnoses by provider - NHS only |
Showing breakdowns and insights by trust, cancer group, diagnosis months and some of the broader Cancer Outcomes and Services Dataset (COSD) metrics across the extended time series (2020 to present). This output is available via the NHS HSCN network only and is updated daily. This output is available via the NHS HSCN network only and is updated daily. |
NHS only - COSD Diagnoses by provider |
|
Cancer Outcomes and Services Dataset - Key metrics in England - NHS only |
Dashboard for stakeholders in NHS England, Cancer Alliances and NHS Trusts to monitor completeness of stage, performance status and CNS indicator in the Cancer Outcomes and Services Dataset (COSD) submission. This output is available via the NHS HSCN network only and is updated daily |
NHS only - COSD Key metrics in England |
|
Cancer Outcomes and Services Dataset - Reference - NHS only |
A single resource describing the common methodology shared by all of the above reports. This is the same methodology (and reference material) currently provided in the Cancer Outcomes and Services Dataset (COSD) monthly feedback reports. This output is available via the NHS HSCN network only and is updated on an ad hoc basis. |
NHS only - COSD Reference tool |
|
Cancer Outcomes and Services Dataset - Submission monitoring - NHS only |
Dashboard intended primarily for NDRS staff (and other interested stakeholders) to gauge the timeliness and content of Cancer Outcomes and Services Dataset (COSD) submissions made by providers. This output is available via the NHS HSCN network only and is updated daily. |
NHS only - COSD Reference tool |
|
Cancer Outcomes and Services Dataset - Trust report - NHS only |
A live version compliment to the Cancer Outcomes and Services Dataset (COSD) monthly feedback report for quick access to trust counts and statistics. This output is distributed via email and shared directly with selected NHS users on a monthly basis. |
N/A |
|
NHS Cancer Staging Completeness Dashboard |
A dashboard created to monitor completeness of the staging metric in Cancer Outcomes and Services Dataset (COSD) using aggregate (measurement) data in the CAS snapshot and intended for public use. This output is publicly available and is updated monthly. |
Public - Staging completeness dashboard |
|
Cancer Quality of Life Survey dashboard |
The Cancer Quality Of Life Survey (QOLS) is an ongoing national survey for people in England who have had a cancer diagnosis, aiming to find out how quality of life may have changed for people diagnosed with cancer. This output is publicly available and is updated twice yearly. |
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|
Cancer registration statistics |
This publication reports on newly diagnosed cancers registered in England in addition to cancer deaths registered in England each year. It includes a summary report showing key findings, spreadsheet tables with more detailed estimates, and a methodology document. This output is publicly available and is updated annually. |
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|
Cancer registrations (2016 - 2022) - NHS only |
Incidence counts and proportions for cancer groups, health geographies and NHS Trusts by demographic and clinical factors for the most recently available 7-year period. A data interrogator tool permits users to explore and export cancer registration data with user definable aggregations, custom plots and choropleths with breakdown and filtering across all available factors and additional census geographies. This output is available via the NHS HSCN network only and is updated annually following the update of the cancer incidence and mortality report. |
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Cancer services GP profiles |
Annual update of the Cancer Services profiles. These profiles present data on cancer incidence and screening; Two-Week Wait (TWW) referrals; diagnostic services; and emergency presentations and admissions. This output is publicly available and is updated annually. |
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|
Cancer treatments dashboard |
Find out more about treatment data for patients who have received chemotherapy, radiotherapy and surgical tumour resections for their tumour in England. This output is availble publicly and is updated annually. |
Public - Cancer treatments dashboard |
|
Cancer survival in England (including lifetables) |
Cancer survival statistics for adults and children by age group, stage at diagnosis, deprivation and by different geographical variations. This output is publicly available and is updated annually. |
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|
Cancer incidence and mortality |
This report presents incidence and mortality for cancers by anatomical site. An incident case of cancer is a new case of cancer, counted once when the cancer is diagnosed. Cancer mortality estimates show the numbers of people who died as a result of cancer. This output is publicly available and is updated annually. |
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Cancer incidence and mortality tool - NHS only |
This report presents the same data for incidence and mortality for cancers by anatomical site but at a more granular level. This output is only available via the NHS HSCN network on the CancerStats1 platform and is updated annually. |
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|
Case-mix adjusted percentage of cancers diagnosed at stages 1 and 2 by sub-ICB in England |
One-year and 3-year case-mix adjusted percentage of cancers diagnosed at stages 1 and 2, as compared to stages 1 to 4, by sub-Integrated Care Board (ICB) for 21 cancer groups. This output is publicly available and is updated annually. |
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|
Chemotherapy, radiotherapy and surgical tumour resections in England |
This website presents the numbers and percentages of tumours diagnosed in England recorded as receiving radiotherapy, chemotherapy or tumour resection. The results are presented by cancer site, year of diagnosis, stage at diagnosis, age, gender, deprivation, ethnicity, and comorbidities. This output is publicly available and is updated annually. |
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Children, Teenagers and Young Adults - NHS only |
This report summarises activity for children, teenagers and young adults (CTYA) receiving Systemic Anti-Cancer Therapy (SACT). This output is available via the NHS HSCN network only and is updated annually. |
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|
Diagnostic intervals 2014-2015 |
Explore the work of the National Disease Registration (NDRS) in partnership with Cancer Research UK (CRUK) to produce population-based statistics on the length of Secondary Care Diagnostic Interval (SCDI) for patients in England diagnosed with one of twenty-five cancer sites in 2014-2015. |
Public - Diagnostic intervals |
|
Emergency presentations of cancer |
This metric estimates the proportion of all malignant cancers where patients first presented to the health system as an emergency. This output is publicly available. This metric is not currently being updated, but it is planned to add it to the Rapid Cancer Registration Data dashboard in future. |
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England cancer prevalence statistics |
An online interactive dashboard and data download providing counts and rates of people living with and beyond a cancer diagnosis in England. This output is publicly available and is updated annually. |
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Genomics - Lynch syndrome dashboards - NHS only |
This report presents data on Lynch syndrome testing among people diagnosed with colorectal and endometrial cancer from the National Cancer Registration and Analysis Service (NCRAS) somatic and germline molecular data sets. This output is available via the NHS HSCN network only and is updated annually. |
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Genomics - Somatic molecular dashboards |
The NDRS somatic molecular data set is a collection of data from NHS laboratories across England performing molecular diagnostics directly on tumours / cancer-derived material. This dashboard contains information on tumours tested for somatic aberrations (that is genetic alterations giving rise to and occurring in cancers) by year, tumour site, gene/ chromosome tested and results. This output is publicly available and is updated annually. |
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|
Get Data Out |
The Get Data Out (GDO) programme from the National Cancer Registration and Analysis Service (NCRAS) publishes in-depth, anonymous data about cancer to support research. Get Data Out produces key statistics about groups of cancer patients. This output is publicly available and is updated annually. |
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Kidney cancer quality performance indicators - NHS only |
This report is aimed to measure the quality of kidney cancer services in England and identify if there is a need for a thee National Institute for Health and Care Excellence (NICE) guideline and quality standard for kidney cancer. This output is available via the NHS HSCN network only and is updated annually. |
NHS only - Kidney Cancer QPIs |
|
Living With and Beyond Cancer - End of treatment summary dashboard - NHS only |
This report shows the number of End Of Treatment Summaries (EOTS) sent to the patient and their GP. It is designed to help Trusts understand the number of EOTS reported through Cancer Outcomes and Services Dataset (COSD) and improve incoming data quality and completeness. This output is available via the NHS HSCN network only and is updated monthly. |
NHS only - End of Treatment Summary |
|
Living with and beyond cancer - Holistic needs assessment dashboards - NHS only |
The Holistic Needs Assessment (HNA) dashboard provides an overview of assessments for cancer patients around their health and well-being needs. This dashboard enables rapid feedback on the quality and completeness of the key data required for meaningful clinical assessment and analysis. This output is available via the NHS HSCN network only and is updated monthly. |
NHS only - Living With and Beyond Cancer HNA data |
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Living with and beyond cancer - Personalised care and support planning dashboards - NHS only |
The Personalised Care and Support Planning (PCSP) dashboard provides an overview of assessments for cancer patients around their health and well-being needs. This dashboard enables rapid feedback on the quality and completeness of the key data required for meaningful clinical assessment and analysis. This output is available via the NHS HSCN network only and is updated monthly. |
NHS only - Living With and Beyond Cancer PCSP data |
|
Local Alcohol Profiles for England |
The Local Alcohol Profiles for England (LAPE) are part of a series of products by Public Health England that provide local data alongside national comparisons to support local health improvement. This output is publicly available. |
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Local health tool indicator update |
This tool provides quality assured small area health-related data visualised in maps, charts, area profiles, and reports. This output is publicly available and is updated annually. |
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Local tobacco control profiles |
The Local Tobacco Control Profiles (LTCP) for England provides a snapshot of the extent of tobacco use, tobacco related harm, and measures being taken to reduce this harm at a local level. The tool allows you to compare your local authority against other local authorities in the region and benchmark your local authority against the England or regional average. This output is publicly available and is updated annually. |
|
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NCARDRS Congenital Anomaly Statistics Report |
This publication contains information on congenital anomalies in babies delivered in England. This output is publicly available and is updated annually. |
Public - NCARDRS statistics report |
|
Non Primary Cancers by Trust |
Counts of non-primary data including recurrences by trust for cancers diagnosed in England. This output is publicly available and is updated annually. |
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Number of cancers by diagnosis Trust |
This release summarises the number of cancers by diagnosis Trust in England using data from the National Disease Registration Service (NDRS) Cancer Analysis System (CAS). This output is publicly available and is updated annually. |
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Post-Colonoscopy Colorectal Cancer audit tool - PHE cancer audit |
This audit tool is for patients diagnosed, or with a suspected diagnosis, of colorectal cancer (i.e. provisional registrations) and with linked Hospital Episode Statistics (HES) event indicating a colonoscopy during the previous 6 – 48 months prior to the diagnostic event. Access to this output requires a PHE cancer audit login. This is updated on a quarterly basis. |
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Public Health Outcomes Framework - C23 – Percentage of cancers diagnosed at stages 1 and 2 |
This indicator is part of the Public Health Outcomes Framework (PHOF). Stage at diagnosis is a measure of how much a cancer has grown and spread, with advanced stages meaning the cancer is bigger or has spread to other parts of the body (metastasis) and consequentially patient outcomes are worse for later stages. This output is publicly available and is updated annually. |
Public - Public Health Outcomes C23 - % of cancer at stage 1 and 2 |
|
Radiotherapy Data Set - Delivery in England |
These tools show radiotherapy delivery in the form of episodes and attendances for different disease treatments and cancer alliances for years from 2009 to 2022, and the second shows the proportion of treatments using intensity modulated radiotherapy for years from 2014 to 2022. This output is publicly available and is updated annually. |
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Radiotherapy Data Set - Dose and fractionation dashboard |
This dashboard aims to provide a suite of metrics of radiotherapy activity relevant to the COVID-19 pandemic using the Radiotherapy Data Set (RTDS). It is hoped these metrics will support clinicians and trust teams in providing cancer services in these difficult times and support their services in delivering safe levels of radiotherapy activity. This output is publicly available and is updated monthly. |
Public - RTDS dose and fractionation |
|
Radiotherapy Data Set - Dose and fractionation dashboard - NHS only |
This dashboard aims to provide a suite of metrics of radiotherapy activity relevant to the COVID-19 pandemic using the Radiotherapy Data Set (RTDS). It is hoped these metrics will support clinicians and trust teams in providing cancer services in these difficult times and support their services in delivering safe levels of radiotherapy activity. This output is available via the NHS HSCN network only and is updated monthly. |
NHS only - RTDS dose and fractionation |
|
Radiotherapy Data Set - Network and region reporting - NHS only |
This suite of reports has been developed as part of the Radiotherapy Data Set (RTDS) partnership to provide rapidly available operational data that can be utilised across radiotherapy networks. These reports are intended to be a high level summery for Providers and Networks. This output is available via the NHS HSCN network only and is updated weekly. |
NHS only - RTDS network and region reporting |
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Radiotherapy Data Set - NHSE quality measures dashboard - NHS only |
The Radiotherapy Data Set (RTDS) Specialised Services Quality Dashboards collect quantitative data on commissioned services, pertaining to specialised services (and sub-services). They are designed to provide assurance on the quality of care and are a contractual obligation for the service provider. This output is available via the NHS HSCN network only and is updated monthly. |
NHS only - RTDS quality measures dashboard |
|
Radiotherapy Data Set - Catchment population - NHS only |
Provider populations based on radiotherapy activity. Populations are allocated to each radiotherapy provider in England based on radiotherapy activity and Middle Super Output Area populations for the year of activity. This output is available via the NHS HSCN network only and is updated annually. |
NHS only - Radiotherapy catchment population |
|
Rapid Cancer Registration Dataset |
The rapid cancer registration dataset (RCRD) is aimed at supporting near-real time analysis of cancer data. This tool provides a suite of metrics relating to cancer incidence and treatment data. This output is publicly available and is updated monthly. |
Public - RCRD dashboards |
|
Rapid Cancer Registration Dataset - NHS only |
The rapid cancer registration dataset (RCRD) is aimed at supporting near-real time analysis of cancer data. This tool provides a suite of metrics relating to cancer incidence and treatment data. This output is available via the NHS HSCN network on the CancedrStat2 platform and is updated monthly. |
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|
Rare condition/diseases prevalence report |
This publication provides information on the prevalence of certain rare diseases and conditions in England. A rare disease is a disease or condition that occurs in less than 1 in every 2,000 people. Very often we do not know how many people actually have a condition, or how and where they are being treated for it. Though individually rare, collectively around 1 in 17 people are affected by a rare disease. Prevalence tells how many people living with and beyond a diagnosis at a given point in time and can help determine the number of people who may have unmet needs that can benefit from new treatments or support services. This output will no longer be updated and has been replaced with the new rare conditions registration statistics publication below. |
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Rare conditions registration statistics |
This publication summarises information about rare conditions , focusing on prevalence estimates of these conditions as a means of reporting basic epidemiological information to a range of users. Over time, it will be expanded to cover other relevant information where possible, such as new statistics and additional conditions. This output is publicly available and is updated annually. |
Public - Rare condition registration statistics |
|
Routes to Diagnosis |
This publication provides annual statistical updates on the routes in which patients get diagnosed with cancer. It incorporates data from 2006 to 2018 which can be used to monitor system changes in cancer pathways and give an indication of the success to improve patient outcomes. This output is publicly available and is updated annually. |
Public -Routes to diagnosis dashboard |
|
Somatic molecular dashboard |
This dashboard contains information on tumours tested for somatic aberrations (that is genetic alterations giving rise to and occurring in cancers) by year, tumour site, gene/ chromosome tested and results. This output is publicly available and is updated annually. |
Public - Somatic molecular dashboard |
|
Stage at diagnosis |
This tool contains information on staging data in England, as collected and compiled by the National Disease Registration Service (NDRS). This output is publicly available and will be updated annually. |
Public - Stage at diagnosis |
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Systemic Anti-Cancer Therapy - Activity dashboard |
This dashboard contains detailed data on all Systemic Anti-Cancer Therapy (SACT) activity from January 2019 until the latest date available. This output is publicly available and is updated annually. |
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Systemic Anti-Cancer Therapy - Activity dashboard - NHS only |
This dashboard contains detailed data on all Systemic Anti-Cancer Therapy (SACT) activity from January 2019 until the latest date available. This dashboard is available via the NHS HSCN network only via the CancerStats2 platform and is updated monthly. |
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Systemic Anti-Cancer Therapy and cancer drugs fund data completeness dashboard - NHS only |
This dashboard includes reports that present the completeness of activity in the Systemic Anti-Cancer Therapy (SACT) data set for all Cancer Drugs Fund (CDF) applications, by drug, for trusts in England. This dashboard is available via the NHS HSCN network only and is updated monthly. |
NHS only - SACT data completeness dashboard |
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Systemic Anti-Cancer Therapy - COVID-19 dashboard (quarterly data extracts) |
This dashboard includes reports that provide an overview of Systemic Anti-Cancer Therapy (SACT) that has been prescribed during the COVID-19 pandemic. The intended audience is anyone with an interest in how anti-cancer therapies have been impacted during the COVID-19 pandemic. This output is publicly available and is updated on a quarterly basis. |
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Systemic Anti-Cancer Therapy - Data completeness and quality dashboard - NHS only |
The dashboard includes reports that aims to help trusts to identify issues with data quality and completeness and support improvements in data reporting. Improvements in the quality and completeness of Systemic Anti-Cancer Therapy (SACT) data will improve the accuracy of information available on all SACT outputs. This output is available via the NHS HSCN network only and is updated monthly. |
NHS only - SACT data quality dashboard |
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Systemic Anti-Cancer Therapy - Data completeness summary dashboard - NHS only |
This dashboard includes reports that provide a summary of data completeness for key metrics, derived from Systemic Anti-Cancer Therapy (SACT) data, with the aim of supporting clinicians, trusts, and cancer alliances in improving data completeness. This output is available via the NHS HSCN network only and is updated annually. |
NHS only - SACT data completeness summary dashboard |
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Systemic Anti-Cancer Therapy - Dose banding dashboard - NHS only |
This includes reports that are intended for commissioners and trusts to understand the implementation of the national dose banding tables for Systemic Anti-Cancer Therapy (SACT) data . This output is available via the NHS HSCN network only and is updated monthly. |
NHS only - SACT dose banding dashboard |
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Systemic Anti-Cancer Therapy - Summary dashboard - NHS only |
This dashboard includes reports that provide a summary of high-level counts for commonly-requested Systemic Anti-Cancer Therapy (SACT) metrics, derived from SACT data. It is hoped these metrics will support clinicians, trusts, and cancer alliances in planning and providing cancer services. This output is available via the NHS HSCN network only and is updated annually. |
NHS only - SACT summary dashboard |
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Systemic Anti-Cancer Therapy - Time to first treatment dashboard |
This public-facing dashboard shows the time to first treatment (TFFT) amongst patients treated with Systemic Anti-Cancer Therapy (SACT) drugs once they have been approved by the National Institute of Health and Care Excellence (NICE) for routine commissioning in the NHS. The dashboard contains results at trust and cancer alliance level, alongside a summary measure for England, all of which are updated on an annual basis. |
SACT TFFT dashboard |
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Systemic Anti-Cancer Therapy - Upload deadlines dashboard - NHS only |
This dashboard includes reports on core targets that trusts are required to meet. Trusts are required to upload and submit Systemic Anti-Cancer Therapy (SACT) files according to an agreed schedule. This report looks at whether or not trusts have met those deadlines. This output is available via the NHS HSCN network only and is updated monthly. |
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Systemic Anti-Cancer Therapy - 30-day mortality post SACT quality indicator dashboard |
This dashboard includes reports that present 30 day mortality post Systemic Anti-Cancer Therapy (SACT) treatment, both unadjusted (observed) and case-mix adjusted rates for key patient factors. This output is publicly available and is updated with new reports on an ad-hoc basis. |
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UK and Ireland Association of Cancer Registries performance indicators |
The United Kingdom and Ireland Association of Cancer Registries (UKIACR) brings together organisations with an interest in developing cancer registration as a resource for studying and controlling cancer in the UK and Ireland. This output is publicly available and is updated annually. |
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Urgent suspected cancer referrals - ;Referral, conversion and detection rates |
The interactive tool provides data on the frequency of and diagnoses resulting from urgent suspected cancer referrals (commonly known as two-week wait referrals). These referrals can be used for people with possible cancer symptoms, to refer them to secondary care for investigation and possible diagnosis. This output is publicly available and is updated annually. |
Last edited: 29 May 2025 4:13 pm
