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The National Cancer Patient Experience Survey (CPES)

The National Disease Registration Service (NDRS) supports CPES by linking data from the survey to core cancer registration data.

Introduction

The English Cancer Patient Experience Survey (CPES) is commissioned by NHS England and NHS Improvement and administered on their behalf by an external survey provider organisation (Picker). The survey provides insights into the care experienced by cancer patients across England who were treated as day cases or inpatients.


CPES and cancer registration data linkage

For the benefit of cancer services, NDRS receives both the adult and U16 CPES data and links it to the core cancer registration data. This allows for further analysis to take place which helps to increase our understanding of patients’ experience. This then supports the NHS to monitor national progress on cancer care, drive local quality improvements, assist commissioners and providers of cancer care and to inform the work of the various charities and stakeholder groups supporting cancer patients .

Find out more about how NDRS collects and keeps patient data safe.  


CPES data sets

From 2020, there were two different types of CPES, one adult and one U16. For the adult CPES there are now 12 iterations with data available for 2010 - 2022. Data from the U16 CPES for 2020 - 2022 is also available and data for subsequent years will be added once both the CPES and cancer registration data become available.

For more information and access to the latest reports from the adult survey visit the National CPES website.

To find out more about the U16 survey visit the specific U16 CPES website


Past publications

Data briefing

Data briefing announcing the data availability for linked CPES/CAS1502 data sets through the Office for Data Release (ODR), and briefly summarising the linkage process.

First stage report

This report covers the first stage of the project: to link each year of the English CPES data from the 2010, 2011/2012 and 2013 surveys to the tumour table in the Cancer Analysis System (CAS) in order to create merged data sets for analyses and research. 

Overview report

This report compares the characteristics of respondents to the English Cancer Patient Experience Surveys (CPES) with relevant recently diagnosed cancer populations. It supports future analyses and interpretation of data from the new linked CPES and cancer registration data sets. 

The majority of results presented in this report are based on analyses for all tumour sites combined.

Detailed data by cancer site

Last edited: 5 February 2025 1:52 pm