Search results
This article explains the methodologies applied when using the SACT data set to evaluate CDF treatments.
The National Disease Registration Service (NDRS) and Department of Health and Social Care (DHSC) hosted a workshop in partnership on the topic of rare disease registration. The workshop took place on Tuesday 6th December 2022, was held via Microsoft Teams and was attended by almost 40 people representing...
Our strategic plan sets our vision, core business and strategic priorities over the next 12 months. It outlines the strides we are and will continue to make to become a user needs focused service, and to strengthen our stakeholder engagement, including with patients and the public.
Learn more about the National Disease Registration Service (NDRS), who we are and why disease registration is important.
Find out about your rights and privacy, how you can see your data that we hold and how you can ask for it to be removed from the disease register.
The British Association of Dermatologists (BAD) and the National Disease Registry Service (NDRS) partnership is a collaborative and multidisciplinary team with clinical, epidemiological, and analytical expertise. Using the high-quality national skin cancer data, the partnership aims to support patient...
Discover more about the work programmes focused on the congenital anomaly and rare diseases data.
The Routes to Diagnosis project links multiple health data sets to categorise the pathways that lead to a patient’s diagnosis of cancer.
Learn how patient data was used to look at the epidimiology of histiocytic diseases.
The Get Data Out programme uses patient data to improve policy and healthcare in the NHS.
