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A blog by Mary Bythell on how NDRS will be delivering the ambitions of the UK rare disease framework on rare disease day.
Discover how patient data is being used to study the link between cancer and cardiovascular disease
The Be Clear on Cancer (BCoC) Programme used patient data to measure the effects of Be Clear on Cancer 'Blood in Pee' campaigns
Discover how the National Disease Registration Service (NDRS) supports NHS clinical genetics services by offering a service to check cancer diagnoses within families.
The International Benchmarking of Childhood Cancer Survival is a research collaboration between multiple population-based cancer registries within and outside of Europe looking to understand why there are variations in childhood cancer survival rates between countries and to highlight any areas that...
NIPT is a way of screening for Down’s syndrome, Edwards' syndrome and Patau's syndrome in a developing baby. NCARDRS supports the evaluative rollout of NIPT by collating the screening data and linking it to registration data.
Find out more about how the NDRS data can be used to support direct care.
Patient data was used to measure the benefits of a new treatment for lung cancer
Discover how patient data is being used to improve sarcoma care in England
Learn about how BARD uses patient data to identify women at increased risk of breast cancer as a late effect of radiotherapy treatment.