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The International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR) is a voluntary non profit International Organisation affiliated with the World health organisation.
The Breast screening After Radiotherapy Dataset (BARD) helps to optimise screening for women who may be at higher risk of developing a second primary cancer.
The Ovarian Cancer Audit Feasibility Pilot (OCAFP) is a jointly funded partnership project with the British Gynaecological Cancer Society, Ovarian Cancer Action and Target Ovarian Cancer.
The PIF TICK and what this means for the information that the National Disease Registration Service (NDRS) produces.
The National Disease Registration Service (NDRS) supports NHS England to improve data collected on cancer recurrence, progression and transformations.
Learn about the Ovarian Cancer Audit Feasibility Pilot (OCAFP), a 3 year collaboration between the charity sector and analysts at the National Disease Registration Service.
EUROCAT is the European network of population-based registries for the epidemiological surveillance of congenital anomalies.
The cancer Quality of Life (QOL) is national survey run by NHS England, aimed at finding out how quality of life may have changed for people diagnosed with cancer.
This document describes the standards for pathology file submission, including the XML construction and file naming to facilitate uploading the NDRS cancer database (ENCORE).
An update on how patient data is being used to improve sarcoma care in England
