Data collection

Under section 259(1)(a) of the 2012 Act, a Data Provision Notice has been served in accordance with the procedure published as part of NHS England’s duty under section 259(8) on the following persons

• General Practices in England

Under section 259(5) of the 2012 Act, the organisation types specified above must comply with the Form, Manner and Period of the data collection requirements.

In line with the national data opt-out operational policy guidance, national data opt-outs will not apply to the collection. However, Type 1 objections will be upheld in collecting this data from general practices and therefore the data for those patients who have registered a Type 1 objection with their GP will not be collected. The Type 1 objection prevents an individual’s personal identifiable confidential information from being shared outside of their general practice except when it is being used for the purposes of their direct care.

The data will be collected from general practices using the GPES.

GPES will collect identifiable patient level data, which is subsequently held by NHS England. A full list of the data items to be collected can be found at Annex A.

There will be one patient cohort:

Patients of any age with a diagnosis of schizophrenia, bipolar affective disorder, and other psychoses up to and including the reporting period excluding patients recorded as ‘in remission’.

The purpose of this cohort is to understand the impact of the health checks and provide rapid and ongoing policy evaluation. This is important to understand physical health outcomes. Patient-level information is required to monitor these outcomes, for example to understand whether the delivery of a particular follow-up intervention affects individual health check indicator values over time.

Personal data is required to inform whether patients on the SMI register have received a health check. This allows NHS England to identify recorded interventions and the outcomes of these.

A data minimisation exercise has been undertaken to ensure that the data collected for each individual is kept to a minimum.

See Appendix A: Cohort for further details regarding the cohort.

A data minimisation exercise has been undertaken to ensure that the data taken on each individual is kept to a minimum.

There are six different groups of data items included in this data extraction. All these data items will be extracted for patients included in the cohort listed above.

• Patient characteristics – demographic and key data items: this group includes the identifiers (for example: date of birth, NHS number and postcode) and demographic information (for example: sex and ethnicity) for each patient, as well as other key data items (for example: patient’s registered GP practice) required for the purposes of the collection
• Patient characteristics – inequalities data items: NHS England requires these data items to estimate the reach to disadvantaged populations. These data items cover patients with SMI. It is critical that NHS England is able to monitor the access/provision of PHSMI services by these patients and attainment of optimal treatment
• SMI health check data items: data relating to the relevant health checks and national screening checks, as recommended by the National Institute for Health Care Excellence (NICE). The SMI health check data items include the latest date and code recorded for alcohol consumption, blood pressure, Body Mass Index (BMI), cholesterol test, glucose test and smoking status (as specified in the data specification document)
• Advice, signposting, information, interventions, referral data items, prescribed medication: required so that NHS England can estimate the following:
• • whether or not a patient received the appropriate advice, signposting, information, intervention and referrals based on NICE guidance
  • whether patients are prescribed appropriate pharmacological interventions
• Outcome health check data items: the date and code of the latest health check (for example: alcohol consumption, BMI, blood pressure, cholesterol test, glucose test, and smoking status (as specified in the data specification)), preceding or on the date of the latest intervention is extracted. This is required so that NHS England can estimate whether or not the appropriate advice, signposting, information, intervention and referrals led to a change (ideally a positive change) in the patient’s health
• Declined data items: the date and code for when a patient declines the relevant health checks, national screening programmes and interventions are extracted (as specified in the data specification document). This is required so that NHS England can estimate whether or not it was the patient’s choice not to accept the intervention

Data item timescales

The data set is structured as:

1. Patient demographics.
2. Health check as indicated by ‘latest reading in the 12 months up to and including the reporting period end date’
3. Interventions – all instances, of referrals for example, in the 12 months up to and including the reporting period end date
4. Outcomes - latest reading (for core health checks and the additional elements of the comprehensive physical health assessment) in the 12 months up to and including the latest intervention. This reading together with the health check reading enables tracking of outcomes.

The first extract took place in January 2021. NHS England received an initial full-year extract of data covering the 2019-2020 financial year. The data has been extracted on a quarterly basis following that initial full-year extract. However, for the financial year 2023-2024, the data is being extracted on a biannual basis. This is due to the retirement of the SDCS collection.