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Part of COSD pathology user guide v5.1.2

CORE

Core chapter on data linkage as part of the pathology user guide version 5.1.1

These data items will be applicable to most tumours and specimens reported by the histopathologist. Where these are mandatory they must be completed, however most data items are required, as such ‘if they are applicable to the specimen being reported’ they must be reported.

Note:

  • it is important to refer to the pathology user guide if reporting pathology direct from the LIMS as there are different linkage items required

Linkage

These items are Mandatory for every record in order to link patient records.

To ensure that records submitted can be linked appropriately, some key data fields must be completed for each record submitted. These are shown in the 'Core Linkage' section.

There will be one linkage section completed each time the record is submitted.


Patient Identity Details

One of the following Core Linkage Identifier sections must be provided per record (1..1)

CORE – Linkage table

Data Item No

Data Item Name

Format

Schema Specification (M/R/O/P)

CR0010

NHS Number

n10

M*

CR0020

Local Patient Identifier

min an1 max an20

M*

CR1350

NHS Number Status Indicator Code

an2

M

CR0100

Person Birth Date

an10 ccyy-mm-dd

M

CR0030

Organisation Identifier (Code of Provider)

min an3 max an5

M

A combination of either ‘NHS Number’ and/or ‘Local Patient Identifier’ are mandatory for the schema. Both can be submitted, but a record cannot be submitted without at least one of these data items.

NHS Number

The ‘NHS Number’ is a unique identifier for a patient within the NHS in England and Wales. This will not vary between any organisations of which a person is a patient.

Notes:

  • almost all patients should have an NHS Number, and this should always be included where available
  • for those who do not have an NHS Number, the hospital number (Local Patient Identifier) must be provided

Local Patient Identifier

For linkage purposes, ‘NHS Number’ and/or ‘Local Patient Identifier’ are required. This is a number used to identify a patient uniquely within a health care provider. It may be different from the patient's case note number and may be assigned automatically by the computer system.

NHS Number Status Indicator Code

The ‘NHS Number Status Indicator Code’ indicates the verification status of the NHS number provided.

NHS Number Status Indicator Code table

National Code

National code definition

01

Number present and verified

02

Number present but not traced

03

Trace required

04

Trace attempted – No match or multiple match found

05

Trace needs to be resolved – (NHS Number or patient detail conflict)

06

Trace in progress

07

Number not present and trace not required

08

Trace postponed (baby under 6 weeks old)

Person Birth Date

The date on which a person was born or is officially deemed to have been born. This should be automatically linked via your local PAS or EPR system when you create a record for the first time.

Organisation Identifier (Code of Provider)

The ‘Organisation Identifier’ of the organisation acting as a health care provider (an6 not applicable to COSD). This is the 3 or 5-digit code of the organisation submitting the demographic details. This will therefore normally be either the organisation where the referral is received or the treating organisation.

Notes:


Demographic Details

Demographic details are required for every record in order to ensure that the correct patient can be identified, and information can be correctly linked. The Demographics section should be completed by every Provider the first time a record is submitted.

There will only be one Demographics section completed for each record. Demographic linkage items will be required each time the record is submitted.

It is anticipated that some of the demographic data items listed below will be collected by every provider with which the patient has contact. Where this information is exchanged, the appropriate data item name should be used.

May be up to one occurrence per record (0..1)

Core - Demographic Details table

Data Item No

Data Item Name

Format

Schema Specification (M/R/O/P)

CR0050

Person Family Name

max an35

R

CR0060

Person Given Name

max an35

R

CR0070

Patient Usual Address (at Diagnosis)

an175 (5 lines each an35)

R

CR0080

Postcode of Usual Address (at Diagnosis)

max an8

R

CR3170

Person Stated Gender Code

an1

R

Person Family Name

That part of a person's name which is used to describe family, clan, tribal group, or marital association.

Person Given Name

The forename(s) or given name(s) of a person.

Patient Usual Address (at Diagnosis)

The patient usual address of the patient at the time of patient diagnosis.

Postcode of Usual Address (at Diagnosis)

The postcode of usual address of the patient at the time of patient diagnosis.

Person Stated Gender Code

Person's gender as self-declared (or inferred by observation for those unable to declare their ‘Person Stated Gender’).

Person Stated Gender Code table

National Code

National code definition

1

Male

2

Female

9

Indeterminate (Unable to be classified as either male or female)

X

Not known (Person Stated Gender Code not recorded)

Last edited: 20 November 2024 10:42 am