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Find out more about a national survey run by NHS England for people who have had a cancer diagnosis around 18 months after diagnosis.

Orphanet is a unique resource for gathering and improving knowledge on rare diseases.

Patient information leaflets on disease registration are available through the National Disease Registration Service (NDRS). 

Find out if patients need to register their details with the National Disease Registration Service (NDRS). 

Explore a new dashboard reporting completeness of staging data for cases discussed at multidisciplinary teams (MDTs) submitted by NHS trusts to the National Disease Registration Service (NDRS).

Explore all annual reports released by the National Congenital Anomalies and Rare Diseases Registration Service (NCARDRS) containing information on congenital anomalies detected in babies delivered between 2015 - 2021.

This document provides guidance to clinicians reporting regimen outcomes for non-curative treatments in the systemic anti-cancer therapy (SACT) data set.

Detailed information about how the National Disease Registration Service (NDRS) collects and records data of people with cancer, rare diseases or congenital anomalies.

A summary of  work undertaken by the National Disease Registration Service (NDRS) where patient demographic factors have been included which can help to understand and reduce inequalities. 

Find out more about the use of Intensity Modulated Radiotherapy (IMRT) treatment across England.