Key to data tables and ICD-10 codes

All data items are listed as follows:

The core data items should be collected for all cancers and other registerable conditions where applicable. See Appendices A to C for the full lists of ICD10 codes. The Haematological ICD-O-3 codes list can be found within the Haematology section ICD codes and WHO disease groups

For diagnoses not included in the site-specific data sets, the core items only should be completed. For some registerable conditions only, pathology reports will be available at presentation – for example, BCC.

D04.0-D04.9 (Carcinoma In-Situ of the Skin) are not required to be collected and submitted through COSD as they are not registerable conditions.

Notes:

• ICD-11 will not be included in this version change for COSD
• however, it is under advisement and will be included in later versions, under the guidance from NHS England

Mandatory

The ‘CORE – Linkage’ items are mandatory and must be submitted for all records. It is vital that these are always available so that the correct information can be linked to the right patient and the correct tumour. A record will not be able to be submitted if any mandatory data item is missing. These records should not be added to the main file otherwise the whole file will fail the schema. 

In some cases, certain data items have been made mandatory within sections to improve the quality of the data submitted. In these cases, no data within that section can be submitted without these mandatory data items being completed. The sections however are required; therefore, a missing section will not affect the submission of all other data.

Required

Most other data-items are set as ‘Required’. This means that if they are applicable to the reported tumour or patient pathway, they must be completed and treated as a mandatory item. Not every data-item however will be applicable to every patient, tumour, or treatment pathway. By using ‘Required’, this allows for a more accurate and inclusive collection of data. Therefore, all applicable data in each section marked as ‘required’ must be submitted for each record as soon as available.

Pilot

In some cases, new data-items maybe piloted by a small group of Trusts. These data do not have to be completed by any other Trust unless you are part of the pilot. If you want to submit these data, please speak with your regional NDRS liaison team(s). All pilot data-items are under review and may change in future version controls of COSD.

Note:

• there is only 1 new data-items being piloted by Trusts in v10

Optional

Optional data items can be submitted by any Trust, but there is no requirement to enforce this data collection at this point. All optional data-items are under review and may change in future version controls of COSD.

Note:

• there are no optional data-items in v10

Meaning of 'Not known' value

'Not known' includes both 'not recorded' and for example 'test not done'. This is usually coded 9 or 99 (depending on the data item format).

List of Registerable Diseases

The ICD10 disease code lists for all registerable conditions (C & D codes) are provided in Appendices A and B. The Haematological ICD-O-3 codes list can be found within the Haematology section ICD codes and WHO disease groups.